Thursday, May 26, 2016

Whazzup???!!! (5-26-16)

Oh, so very much! Jonathan's Graft vs. Host disease has settled in his digestive system, primarily in his stomach and intestines. It's not fun, I can tell you that! Add to it that he somehow contracted norovirus, and it requires even more medication. The "upside" is the steroids (prednisone) he takes for the Graft vs. Host disease increased his appetite and he's gained back the weight he lost. He goes to COH twice a week, and I normally take him on Fridays, which is an all day trek. When I get home, all I want to do is eat and sleep. I've become notorious for yelling "Leave me alone!" once I get in bed on Fridays. Not even promises of treats will cause me to get out of bed.

Then there's Daniel. While he had no ill effects from donating, his seizures started up about 5 weeks ago after being seizure-free for nearly a year. We had been gradually decreasing his phenobarbital since September last year, and he had recently decreased to 1/2 of a 32.4 mg tablet at bedtime, so he went back up to a full tablet at bedtime. I picked him up on Tuesday night so he could see the Specialist yesterday, and then stay over with us until Monday night (5-30) Today, Shilo and I decided to drive from Long Beach to CiCi's Pizza in Corona because pizza is Daniel's favorite food. Never mind that Shilo is gluten intolerant! Shilo ate salad and the pizza toppings, and I ate the outside crust he left, plus salad. I'm a carboholic, but I think I can go until next month without bread. (Roll me home, boys!)

Child #5 told me on Mother's Day that he and his lovely wife are expecting their second child. I'm so very excited about this! 9 months ago, they were separated, and heading for a divorce, and now this! I'm really happy that they decided to get back together and make it work.

My oldest, who I invited to move in with us in September last year after a nasty breakup has only reinforced my feelings that I'm too soft-hearted when it comes to my offspring. If anyone deserves a paddling, it's him, simply because he refuses to follow basic rules, and getting him to move out is futile. Maybe if he'd make an attempt to catch up on the back rent he owes, I'd feel better about it.

Child #3 is is living happily on the East Coast with his girlfriend. I love hearing from him, and spent over an hour on the phone with him on Mother's Day.

Then there's Daddy Wayne (AKA: Daddy #2), who recently had his other leg amputated. I visited him about 2 weeks ago in the Rehab section of the hospital he's in, and I was shocked! He was mostly unresponsive, and when he finally responded just as I was leaving, he said all sorts of crazy things. I figured he had just been through too much, and waited two days and called him. He didn't answer. I waited an hour and called again. Both times I left a message, but I was getting worried. He always calls me back right away. Every few days I called, and on Monday I decided I had to do the thing I dreaded: I called his roommate (AKA: The Ex) and told her about my concerns. She was extremely kind, and explained that he had been over-medicated, and the dialysis wasn't filtering the medication from his blood, and as a result, he was poisoned! I have seen him in bad shape before, but this is the worst I've ever seen him. Fortunately, he was already recovering by the time I spoke to her, and he called me Wednesday while I was out, so I took Daniel with me, and we visited him. I even took a short video recording of him explaining what happened so I could share it with anyone who was interested at the Pasadena Munch.

Oh, you wanted to know about me? Well, I'm still standing, and I'm learning more about myself every day. I still have horrible insomnia, and I'm doing my best to stay positive about all this, and, honestly, I realize that that I should count my blessings, because I know how very fortunate I am to have what I do, and because I'm not gonna give up, I'm planning on heading back to the dungeon again soon.

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